Thursday, October 1, 2009

No Flying Monkeys Yet

I know there are flying monkeys coming but I havn't seen them yet! It has been a fairly uneventful trip thus far. A scan in August seemed to show no significant changes in size or location of the lymph nodes. Blood work seems good. Tired, but then I just turned 48! This is a problem, only because its getting harder to tell symptoms of lymphoma, from old age, menopause or being Ryan's mom. I went back to see Dr. Cheson at Georgetown yesterday. My good witch wasn't there, which makes things a little less comfortable. I was happy to hear I had lost some weight. My other doctors would be singing and dancing, but no such luck with the wizard. Seems losing weight without trying is a bad thing with this cancer, so now I have to consider the possibility that it has spread to my stomache and is making me feel full. That isn't the worst thing, but if that is what has happened it has happened since my scan, which means it is accelerating a bit. That usually goes along with night sweats, but then I'm hot all the time so who knows? There is a possibility that treatment may be closer than I think, but nothing is for sure. I personally would like to drop some more weight before shrinking any tumors, its a lot easier than actually dieting. The wizard, (Cheson) didn't think that was such a good idea. Just to prove him wrong, I went and pigged out at Coastal Flats afterward, courtesy of my wonderful husband. I'll have to have another scan before they can convince me we have gotten to the point of treatment. A lot of people wonder why we are waiting, especially if we know it is going to shrink the lymph nodes. What I say is this - so far there isn't a cure, it won't ever go away completely. As long as I am feeling good, why make myself feel bad? Who knows what is going to happen, even in the near future? There are so many things being done with new treatments. The longer I can go without chemo the longer I can stay eligible for new trials and experimental treatments. We will see. No worries, no panic, it is still a long stretch of yellow bricks ahead:) And when those monkeys come flying, I'll be ready cause I will know it is time to fight! I hate flying monkeys!

4 comments:

Jill said...

Thank you for sharing your journey. I have also had my disease described as "indolent or lazy" and never knew how nice those words were! Celebrate the victories! Jill~~

Ella said...

I think you are a very brave and smart person and what ever you think or feel is right for you....I will be here to support all the way!

Kim G said...

Keeping you in my thoughts and prayers. Just say NO to the monkeys!!!

Liz said...

Julie, you are amazing! I love your thoughts about staying strong and eligible for new trials/treatments! I also greatly respect the way you listen and respond to your inner guidance, while continuing to research and collect information. Thank you for sharing this information - You are such a beautiful gift to us all Julie! - Love You- Liz

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